Get Involved Posts
Help shape better support for families caring for someone with pulmonary fibrosis
Researchers at the University of the West of England (UWE Bristol) are inviting people with lived experience of pulmonary fibrosis to take part in an online research workshop. The study, is led by Kathy Rogers, Senior Lecturer in Adult Nursing. Who is looking at how support could be improved for family members and friends caring…
Read MoreStatement from the Pulmonary Fibrosis Trust on NICE Draft Guidance for Nerandomilast
The Pulmonary Fibrosis Trust is deeply disappointed by NICE’s draft decision not to recommend nerandomilast for routine NHS use in people living with idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF). As one of the organisations participating in the consultation process, alongside Asthma + Lung UK and Action for Pulmonary Fibrosis, we are currently…
Read More‘At 53, I was told I’d never walk again. At 62, I’m running the length of Britain – here’s how I fought back’
PFT Patron Nick Ashill is preparing to run 900 miles from John O’Groats to Land’s End this September to raise awareness for everyone living with pulmonary fibrosis. Nick recently spoke to Runner’s World about the challenge, his extraordinary journey, and why raising awareness of PF matters so much. Read the full article here: https://www.runnersworld.com/…/running-length-of…/ Find…
Read MoreNick Runs Britain: 900 Miles for the Pulmonary Fibrosis Trust
Get involved: PFT Every Breath Club: 900 Miles with Nick 2026 | Pulmonary Fibrosis Trust Details about the run: Nick Runs Britain: 900 Miles for the PFT 900 miles. One mission: Help People Breathe British ultrarunner to take on the length of Britain for a devastating lung disease, with the nation invited to join…
Read More“The Magnificent AKs” Charity Fundraising Concert. Malmesbury, Wiltshire. In aid of the PF Trust.
Please see the below update from Phil Jones of the Magnificent AK’s who performed a charity fundraising concert in aid of the PF Trust during the height of storm Claudia in November 2025. Despite the severe weather interruptions the band managed to raise an incredible £1,600! Please follow this link to view some of the…
Read MoreGreat North Run 2024 FULL
All our places for the Great North Run 2024 are full, but if you are running for us through the ballot then please get in touch as would love to support you! If you wish to run for us in 2025, please contact us now to be added to the waitlist. Contact us today by…
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