Posts by PFT Admin
Celebrating the people making a difference: The 2026 ILD-IN Awards
At the 2026 ILD-IN Annual Conference, held in Birmingham on 4–5 October, the Pulmonary Fibrosis Trust was proud to sponsor three awards recognising individuals making a difference within the ILD community. Celebrating this year’s winners Outstanding Contribution to the Interstitial Lung Disease Community – Mark Major This award recognises individuals whose dedication has helped…
Read MoreThe Patients Association calls for stronger protections for independent patient voice in Health Bill
The Pulmonary Fibrosis Trust was among the patient organisations represented at a recent roundtable hosted by the Patients Association, exploring how independent patient voices can be protected and strengthened within the Health Bill. Following the discussion, the Patients Association has published a report outlining seven principles for future patient representation in health and social care.…
Read MoreThe run has finished. The story is still moving.
PFT patron Nick Ashill has run more than 950 miles from John O’Groats to Land’s End to raise awareness of pulmonary fibrosis. Now, the work continues. At John O’Groats, Nick Ashill set off into driving rain and howling wind. By the time he reached Land’s End, the skies had cleared. Between those two moments lay…
Read MorePulmonary Fibrosis Trust attends ILD-IN Conference in Birmingham
On Sunday 4 – Monday 5 October, the Pulmonary Fibrosis Trust was delighted to be represented at the ILD-IN Annual Conference in Birmingham. The conference brought together healthcare professionals working in interstitial lung disease (ILD), providing an opportunity to share knowledge, experiences and developments in the care of people living with these conditions. Our Administrator…
Read More“What’s pulmonary fibrosis?” A personal story from Peter Street
Earlier this month, Peter Street got in touch with the Pulmonary Fibrosis Trust and shared the story of his diagnosis with us. Peter has spent much of his life writing — as a published poet, memoirist and writer-in-residence. When pulmonary fibrosis unexpectedly became part of his own story, he did what he does best and…
Read MoreWorld Lung Day 2026
World Lung Day 2026 On World Lung Day, the Pulmonary Fibrosis Trust stands alongside people across the world living with lung disease, their families, carers and the healthcare professionals who support them. Pulmonary fibrosis remains a condition that far too many people have never heard of until it affects them or someone they love. That…
Read MoreProtected: My Pulmonary Fibrosis – By Peter Street
There is no excerpt because this is a protected post.
Read MoreIn the news: Ultrarunner sets his sights on Inverness in latest stretch of John O’Groats to Land’s End challenge
An athlete who defied the odds following a 60mph hit and run has set off on the fourth leg of his ultramarathon across the Highlands. Professor Nick Ashill departed from Bonar Bridge in Sutherland this morning to complete the 37-mile stretch to Inverness. The 62-year-old is currently running from John O’Groats to Land’s End to…
Read MoreHelp shape better support for families caring for someone with pulmonary fibrosis
Researchers at the University of the West of England (UWE Bristol) are inviting people with lived experience of pulmonary fibrosis to take part in an online research workshop. The study, is led by Kathy Rogers, Senior Lecturer in Adult Nursing. Who is looking at how support could be improved for family members and friends caring…
Read MoreStatement from the Pulmonary Fibrosis Trust on NICE Draft Guidance for Nerandomilast
The Pulmonary Fibrosis Trust is deeply disappointed by NICE’s draft decision not to recommend nerandomilast for routine NHS use in people living with idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF). As one of the organisations participating in the consultation process, alongside Asthma + Lung UK and Action for Pulmonary Fibrosis, we are currently…
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