Posts by PFT Admin
“What’s pulmonary fibrosis?” A personal story from Peter Street
Earlier this month, Peter Street got in touch with the Pulmonary Fibrosis Trust and shared the story of his diagnosis with us. Peter has spent much of his life writing — as a published poet, memoirist and writer-in-residence. When pulmonary fibrosis unexpectedly became part of his own story, he did what he does best and…
Read MoreWorld Lung Day 2026
World Lung Day 2026 On World Lung Day, the Pulmonary Fibrosis Trust stands alongside people across the world living with lung disease, their families, carers and the healthcare professionals who support them. Pulmonary fibrosis remains a condition that far too many people have never heard of until it affects them or someone they love. That…
Read MoreProtected: My Pulmonary Fibrosis – By Peter Street
There is no excerpt because this is a protected post.
Read MoreIn the news: Ultrarunner sets his sights on Inverness in latest stretch of John O’Groats to Land’s End challenge
An athlete who defied the odds following a 60mph hit and run has set off on the fourth leg of his ultramarathon across the Highlands. Professor Nick Ashill departed from Bonar Bridge in Sutherland this morning to complete the 37-mile stretch to Inverness. The 62-year-old is currently running from John O’Groats to Land’s End to…
Read MoreHelp shape better support for families caring for someone with pulmonary fibrosis
Researchers at the University of the West of England (UWE Bristol) are inviting people with lived experience of pulmonary fibrosis to take part in an online research workshop. The study, is led by Kathy Rogers, Senior Lecturer in Adult Nursing. Who is looking at how support could be improved for family members and friends caring…
Read MoreStatement from the Pulmonary Fibrosis Trust on NICE Draft Guidance for Nerandomilast
The Pulmonary Fibrosis Trust is deeply disappointed by NICE’s draft decision not to recommend nerandomilast for routine NHS use in people living with idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF). As one of the organisations participating in the consultation process, alongside Asthma + Lung UK and Action for Pulmonary Fibrosis, we are currently…
Read MoreNick Runs Britain: 900 Miles for the Pulmonary Fibrosis Trust
Get involved: PFT Every Breath Club: 900 Miles with Nick 2026 | Pulmonary Fibrosis Trust Details about the run: Nick Runs Britain: 900 Miles for the PFT 900 miles. One mission: Help People Breathe British ultrarunner to take on the length of Britain for a devastating lung disease, with the nation invited to join…
Read More“The Magnificent AKs” Charity Fundraising Concert. Malmesbury, Wiltshire. In aid of the PF Trust.
Please see the below update from Phil Jones of the Magnificent AK’s who performed a charity fundraising concert in aid of the PF Trust during the height of storm Claudia in November 2025. Despite the severe weather interruptions the band managed to raise an incredible £1,600! Please follow this link to view some of the…
Read MoreFire Side Chat at The WaterSide Inn
The Pulmonary Fibrosis Trust are proud to be closely linked with ILD-IN.Our patron Alain Roux recently met up with ILD-IN Co chair Marium Navqi for a fireside chat at The Waterside Inn, to discuss his family’s experience with pulmonary fibrosis
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