Trusted Sources of Information
Finding reliable information can make it easier to access the support, advice and services you need when living with pulmonary fibrosis. We've brought together a selection of trusted organisations and resources covering emotional wellbeing, financial support, travel, mobility and specialist care, helping you find further guidance when you need it.
Emotional and bereavement support
British Association of counselling and psychotherapy: www.bacp.co.uk
Counselling: www.counselling-directory.org.uk
Cruse Bereavement Support: www.cruse.org.uk
The Good Grief Trust: www.thegoodgrieftrust.org
Financial advice
Government Benefits Helpline: www.gov.uk/disability-benefits-helpline
Benefits and Grants Advice: www.turn2us.org.uk
Care and Disability advice: https://www.moneyadviceservice.org.uk/en/categories/care-and-disability
Adapting your home
Disabled Facilities Grant: www.gov.uk/disabled-facilities-grants
Staying mobile
Disabled Parking: www.gov.uk/blue-badge-scheme-information-council
Motability: www.motability.co.uk
Radar Accessible Toilet Key: www.ageukincontinence.co.uk
CareCo: https://www.careco.co.uk/
Associated charities
Action for Pulmonary Fibrosis: www.actionpf.org
Asthma + Lung UK https://www.asthmaandlung.org.uk
The European Lung Foundation ‘Healthy Lungs for Life’ is one of the largest ever lung health campaigns, raising awareness of the importance of healthy lungs: www.europeanlung.org
European Pulmonary Fibrosis Federation https://www.eu-ipff.org/
Travel Information
Find out about air travel charges and restrictions for passengers with lung conditions: www.europeanlung.org
The following links provide additional information on other aspects of travelling with a medical condition:
http://www.insurancewith.com/travelling-with-a-medical-condition/
http://www.webmd.com/diabetes/tips-traveling
http://www.friendshipcircle.org/blog/2012/05/03/airports-and-special-needs-travel-a-complete-guide/
Links for contacting specialist ILD nurses
Action for Pulmonary Fibrosis support line information: https://www.actionpf.org/information-and-support/support-line
Other
Lung Health Hub: Breathing Exercises to Strengthen Lungs - a comprehensive
patient-friendly guide covering diaphragmatic breathing, pursed lip
breathing, and Inspiratory Muscle Training (IMT) with step-by-step
instructions. These techniques are used in pulmonary rehabilitation for
both COPD and pulmonary fibrosis patients:
https://lunghealthhub.com/breathing-exercises-to-strengthen-lungs.html
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