Pulmonary Fibrosis Trust

Every breath matters

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Every Breath is Precious

900 miles for the Pulmonary Fibrosis Trust

One man running. Thousands fighting for breath.

Your support today helps people with Pulmonary Fibrosis feel less alone — and gives hope where breath is running out.

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  • Registered UK charity (CIO 1213302)

  • UK‑wide patient and family support

  • Research, care and practical help

  • Trusted by patients & clinicians across the UK

900 Miles for Every Breath

On 5 September 2026, endurance runner Nick Ashill will set off from John O’Groats, running all the way to Land’s End.

  • 34 Marathons

  • Over 30 days

  • One of the highest oxygen demand sports in the world

  • Nick will be 62 years old when he finishes

This run isn’t about records.
It’s about turning endurance into hope for people whose lungs are failing them.

Follow Nick’s journey
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Pulmonary Fibrosis

When Breathing Becomes the Hardest Part of Life

Pulmonary Fibrosis is a devastating lung condition.
It scars the lungs.
It steals breath.
And there is currently no cure.

For many people, everyday tasks — walking upstairs, getting dressed, even laughing — can feel like running a marathon.

Pulmonary Fibrosis doesn’t stop after one day.
That’s why ongoing support matters.

  • Our Partners and Supporters:

Headline Partner

Kit Supplier

Endurance Partner

Kit Supplier

Footwear Partner

Why This Run Matters

Running demands oxygen. Pulmonary Fibrosis takes it away. Every mile Nick runs is a powerful reminder of what people with PF fight for every single day — the ability to breathe.

This challenge is raising vital funds to help the Pulmonary Fibrosis Trust (PFT):

  • Expand emotional support services so no one faces PF alone

  • Support research to improve understanding and future outcomes

  • Provide essential equipment and home adaptations like stairlifts and mobility aids

Help someone breathe easier today(opens in new tab)
Nick
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Get Involved

You don't have to be an ultra runner like Nick.

You don't need to hit a certain distance.

You just need to start.

Walk, run, cycle, swim - whatever works for you.

Every mile you move helps raise awareness of pulmonary fibrosis, and supports people living with this life-changing condition

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Nick's Story:

Nick Ashill is no stranger to extreme endurance.
But his toughest journeys haven’t just been physical.

In his forthcoming book, The Longest Run: A Story of Endurance, Trauma and Forgiveness Nick shares a raw, honest account of:

  • Trauma and PTSD

  • Physical injury and recovery

  • Loss, divorce and depression

  • Growth, healing and forgiveness

All proceeds from the book will support the Pulmonary Fibrosis Trust —turning personal pain into hope for others.

Who is Nick Ashill?(opens in new tab)
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  • Follow Nick:

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Raised so far
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Every Breath Club 900 miles with Nick

A strong start. A big goal. A collective effort.

We’re thrilled to begin this campaign with a £10,000 partnership donation, marking the first milestone towards our £100,000 fundraising target. This is just the beginning.

Over the coming months, thousands of supporters like you will help build this total — funding vital support, advocacy and awareness for people affected by pulmonary fibrosis. Fundraising runs until the end of October. Join us now and help grow this figure into meaningful change.

Every pound raised directly supports people and families living with pulmonary fibrosis.

Raised so far
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Follow The Journey

  • Training Run – 7th August

    Preparation makes the difference.

  • Training Run – 6th August

    Another training run completed.

  • Training Run – 5th August

    One step closer to the finish line.

  • Training Run – 2nd August

    Another few miles in the bank.

  • Training Run – 1st August

    Every run counts.

  • Training Run – 31st July

    Keeping the momentum going.

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View Run Schedule
Pulmonary Fibrosis

Pulmonary Fibrosis Doesn’t Take a Day Off

For people living with Pulmonary Fibrosis, every breath can be a struggle — every single day.
There is no cure. No pause. No easy moments.

A monthly gift means someone is there tomorrow.
And the day after that.
And on the days when breathing feels hardest.

Most supporters choose to give monthly, because Pulmonary Fibrosis doesn’t stop — and neither should care, understanding and hope.

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Give Breath All Year Round


Join us and help people living with Pulmonary Fibrosis feel less alone — every day. Any donation helps someone breathe a little easier

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Get In Touch!

01543 442 191

[email protected]

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About Us

Pulmonary Fibrosis Trust provides personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.

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Community

There is a strong pulmonary fibrosis community sharing experiences and providing support.

As a part of the community, the Pulmonary Fibrosis Trust has a platform available to all to raise awareness and provide support to each other.

Make sure you follow us on social media and join our PF Trust Community mailing list. We welcome stories, experiences and tips and share these with the community via our newsletter.

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