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Pulmonary Fibrosis Trust

Pulmonary Fibrosis Trust

Every breath matters

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        • About the Pulmonary Fibrosis Trust

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          • Pulmonary Fibrosis Trust Welcomes Approval of New Drug
          • Chair Peter Bryce Word on Health Interview
          • ‘At 53, I was told I’d never walk again. At 62, I’m running the length of Britain – here’s how I fought back’
          • Jacob’s Ground Hopping Journeys
          • Nick Runs Britain: 900 Miles for the Pulmonary Fibrosis Trust
        • About
          • About the Pulmonary Fibrosis Trust
          • PFT Patron – Alain Roux
          • Meet the Trustees
          • Ambassadors
          • Research
        • Contact us
  • Support
        • Support

        • About Pulmonary Fibrosis
          • What is pulmonary fibrosis?
          • Diagnosing Pulmonary Fibrosis
          • Monitoring and management
          • How to help yourself
          • Allowances available
        • Support available
          • Emotional support
          • Equipment funding
          • Caravan holidays
          • Useful links
  • Get involved
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Blog

Home - Blog - Page 6

GKA Idiopathic Pulmonary Fibrosis

GKA, a UK based medical market research agency, are looking to speak to individuals living with Idiopathic Pulmonary Fibrosis. We are currently undertaking a research project to consider how we can improve individuals experience of taking part in clinical trials. Please note that this is not a clinical trial, but a simulated experience. Who: This …

Read moreGKA Idiopathic Pulmonary Fibrosis

Thank you Jobie!

We would like to say a massive thank you to Jobie Travers, our ambassador, for all the hard work he has done over the years. We asked Jobie about if he could let us know about his fundraisers. “Hi my name is Jobie, an ambassador for the Trust, though not as active now because of …

Read moreThank you Jobie!

PFT Charity Single ‘Christmas Time’

‘Christmas Time’ Song Bio: Written for The Pulmonary Fibrosis Trust, Ambassador Ben Drake, wanted to try and capture the spirit of Christmas, being thankful for our loved ones who are there for us in times of need. A thank you of sorts in part, to anyone who looks after those in need, much like his mum …

Read morePFT Charity Single ‘Christmas Time’

Well done Jacob!

How amazing that Jacob’s school devoted their assembly to pulmonary fibrosis and all the fundraising Jacob has done. They presented him with a certificate which is absolutely incredible. What a lovely way to show thanks to little Jacob!

Read moreWell done Jacob!

Mastering Your Crown

During lockdown Emma wrote a book called ‘Mastering Your Crown; A Guide to Transforming Anxiety, Fear, Loss and Grief in Times of Crisis’ which was largely inspired by her wonderful mother but also because she could see so many people struggling mentally and emotionally with anxiety, fear, loss and grief. Sadly, Ann, Emma’s mother passed away …

Read moreMastering Your Crown

Pantomime Charity Event

Lynne was diagnosed with pulmonary fibrosis almost 2 years ago, and no one in her village had heard of the condition. The committee for the Amateur Dramatics (Russell Players) very kindly decided to support Pulmonary Fibrosis Trust by hosting a pantomime called Goldilocks, Three Bears and the Detectives which starts on November 19th. Peter Bryce, …

Read morePantomime Charity Event

Show your support this festive season

The countdown to Christmas has started and we are excited to present this year’s PFT Christmas card designs. Choose from the Fluffy Robin, Christmas mail, the Cute Deer or the Snowman’s buddy. Each pack contains one design and includes 10 cards and 10 envelopes. We ask for a £5 donation for each pack ordered which …

Read moreShow your support this festive season

Lucy runs Alton Towers half marathon

Lucy will be running the Alton Towers half marathon on 13th November 2022 and will be raising money for PF Trust along the way, as it’s a charity very close to her heart and is affecting her family. Her grandpa was diagnosed with pulmonary fibrosis in 2016 and two of his siblings were also diagnosed …

Read moreLucy runs Alton Towers half marathon

Pulmonary Fibrosis Trust Charity Manager

Location: Home-based role with occasional travel Closing date: 14th November 2022 Interview dates: Interview dates to be confirmed Hours: 16 hours per week Salary: £12,000 The Pulmonary Fibrosis Trust provides personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness, which affects the lungs. The charity is growing in the number of people it …

Read morePulmonary Fibrosis Trust Charity Manager

March Hare and Hare Beer Bunch London Bridges Challenge

Janice and John Pritchett who own the March Hare pub have done several fundraisers this year which is absolutely amazing. Janice kindly let us know how the most recent fundraiser went. “Our intrepid explorers, Mike, Simon and Keith successfully completed the March Hare and Hare Beer Bunch London Bridges Challenge, including visiting a few pubs …

Read moreMarch Hare and Hare Beer Bunch London Bridges Challenge
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01543 442 191

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Pulmonary Fibrosis Trust
c/o EBS
Stowe House
St Chad’s Road
Lichfield
Staffordshire
WS13 6TJ

Pulmonary Fibrosis Trust is a Charity registered in England with number 1213302
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