Pulmonary Fibrosis Trust
Every breath matters
About the Research:The purpose of this research is to understand the impact of living with Interstitial Lung Disease on patients. Participants will be asked to complete an online survey which will take approximately 30 minutes. As a token of our appreciation for their time and opinions, we are offering an incentive of £35 to anyone who completes …
It was an absolute pleasure for Peter Bryce, chair of PF Trust, to attend a cheque presentation and meet Alain Roux, and his staff. We are so grateful to Alain Roux and The Waterside Inn for donating £7,000 and thinking of us in their fundraising.
Micky LeVoguer sadly lost Charlie Kiss to IPF and had been looking after his puppy Alice since he passed away. Alice has gone to a great family but as Micky missed the daily walks with her she decided she wanted to walk daily in October with a target of 100 miles, hoping to raise £100 …
Thank you so much to the Leicestershire Pulmonary Fibrosis Support Group who invited our chair, Peter Bryce, to give a presentation on what our charity does and also donate £1000. This donation will make such a huge difference to the vital funding and work that we do and we cannot thank you enough.
Thank you so much to James who has been running an amazing 10 miles every day in memory of his father in law, Gary Dean who sadly passed away. James will also run a marathon on the 31st January if he reaches his goal of £6,000 as he is so close. What a true inspiration! …
GKA, a UK based medical market research agency, are looking to speak to individuals living with Idiopathic Pulmonary Fibrosis. We are currently undertaking a research project to consider how we can improve individuals experience of taking part in clinical trials. Please note that this is not a clinical trial, but a simulated experience. Who: This …
We would like to say a massive thank you to Jobie Travers, our ambassador, for all the hard work he has done over the years. We asked Jobie about if he could let us know about his fundraisers. “Hi my name is Jobie, an ambassador for the Trust, though not as active now because of …
‘Christmas Time’ Song Bio: Written for The Pulmonary Fibrosis Trust, Ambassador Ben Drake, wanted to try and capture the spirit of Christmas, being thankful for our loved ones who are there for us in times of need. A thank you of sorts in part, to anyone who looks after those in need, much like his mum …
How amazing that Jacob’s school devoted their assembly to pulmonary fibrosis and all the fundraising Jacob has done. They presented him with a certificate which is absolutely incredible. What a lovely way to show thanks to little Jacob!
During lockdown Emma wrote a book called ‘Mastering Your Crown; A Guide to Transforming Anxiety, Fear, Loss and Grief in Times of Crisis’ which was largely inspired by her wonderful mother but also because she could see so many people struggling mentally and emotionally with anxiety, fear, loss and grief. Sadly, Ann, Emma’s mother passed away …
