There is a great deal of medical research being conducted by the pharmaceutical and research companies into causes and cures for pulmonary fibrosis. As a small trust we do not try to get involved in that area, but we will make people and carers aware of opportunities to contribute to that research.
We do get involved in research projects that affect how people can cope with the effects of Pulmonary Fibrosis. An example of this is a project aimed at improving the pulmonary rehabilitation course offered to people suffering with Pulmonary Fibrosis. Other areas that we feel need more research are:-
- Improvements into portable oxygen concentrators to enable more people to live a more active life.
- Improvements into monitoring of vital signs for people suffering from pulmonary fibrosis so that people and medics can learn more about the various episodes that affect people.
Other research
"Our research into IPF is helping researchers to unravel the complex steps that are involved in the disease. And they’re pioneering the development of simpler diagnosis, better treatments and better care for people who have this condition."
Read more on the Asthma + Lung UK website here
We are delighted to share with you that the article Fixing lung health in the UK: accelerating respiratory research & innovation has now been published online in Thorax.
You can read the article in full (for free) here.
Following the original report, the article highlights some of the recommendations made as exemplars of the change that could potentially happen with greater coordination of, and investment in, lung health research.