Pulmonary Fibrosis Trust

Every breath matters

01543 442 191

[email protected]
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Welcome to the Pulmonary Fibrosis Trust

Providing personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.

Join us for the Virtual London Marathon 2022

Would you like to join the PF Trust's 2022 London Marathon Team or know someone who would?

Get in touch today to register your place.
What is pulmonary fibrosis?

Find out about pulmonary fibrosis symptoms, how it is diagnosed and treatment options.

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Support available

From a listening ear to funding practical equipment, find out how we could support you.

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Get involved to support others

Could you help by being an Ambassador or set up a fundraising event? Get in touch to find out more.

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Latest updates

In memory of May Arcari

Thank you so much to Tasha, her family and friends who fundraised for us in memory of her gran May. Read Tasha’s fundraising story in her own words below. We lost my amazing gran May Arcari on 3rd Nov 2022. She fought right until the very end. It would have been her 80th birthday on …

GKA Idiopathic Pulmonary Fibrosis

GKA, a UK based medical market research agency, are looking to speak to individuals living with Idiopathic Pulmonary Fibrosis. We are currently undertaking a research project to consider how we can improve individuals experience of taking part in clinical trials. Please note that this is not a clinical trial, but a simulated experience. Who: This …

Holly walks 7,700 every day for a month

Thank you so much to Holly who raised £800 as part of her fundraiser where she walked 7,700 steps every day in memory of her Grandad, as it would have been his 77th birthday last year. 💙 💜

Fundraising ball

Thank you so much to Tina and her daughter, Georgina, for holding a fundraising ball in November 2022. Everyone had a fabulous night and in total £3,175 was raised which is absolutely amazing. This will make a huge difference to the PF Trust!

Goodbye AmazonSmile

Unfortunately Amazon have announced they will be closing their AmazonSmile program this month. Thank you to everyone who signed up and donated, we are very grateful for your support. £1,730.50 has been raised in the last few years so thank you so much to all who signed up! 💙 💜

Research to understand the impact of living with Interstitial Lung Disease on patients

About the Research:The purpose of this research is to understand the impact of living with Interstitial Lung Disease on patients. Participants will be asked to complete an online survey which will take approximately 30 minutes. As a token of our appreciation for their time and opinions, we are offering an incentive of £35 to anyone who completes …

The Waterside Inn’s 50th anniversary celebrations

It was an absolute pleasure for Peter Bryce, chair of PF Trust, to attend a cheque presentation and meet Alain Roux, and his staff. We are so grateful to Alain Roux and The Waterside Inn for donating £7,000 and thinking of us in their fundraising.

Micky walks 100 miles in a month.

Micky LeVoguer sadly lost Charlie Kiss to IPF and had been looking after his puppy Alice since he passed away. Alice has gone to a great family but as Micky missed the daily walks with her she decided she wanted to walk daily in October with a target of 100 miles, hoping to raise £100 …

Thank you to Leicestershire PFSG

Thank you so much to the Leicestershire Pulmonary Fibrosis Support Group who invited our chair, Peter Bryce, to give a presentation on what our charity does and also donate £1000. This donation will make such a huge difference to the vital funding and work that we do and we cannot thank you enough.

10 miles a day in January

Thank you so much to James who has been running an amazing 10 miles every day in memory of his father in law, Gary Dean who sadly passed away. James will also run a marathon on the 31st January if he reaches his goal of £6,000 as he is so close. What a true inspiration! …