Every Breath is Precious
900 Miles for the Pulmonary Fibrosis Trust
In September 2026, one man will run the length of Britain.
In September 2026, one man will run the length of Britain. From John O’Groats to Land’s End. Almost a marathon a day for a month. He is running for people who cannot
Why This Run Matters
Running demands oxygen. Pulmonary Fibrosis takes it away. Every mile Nick runs is a powerful reminder of what people with PF fight for every single day — the ability to breathe.
This challenge is raising vital funds to help the Pulmonary Fibrosis Trust (PFT):
Expand emotional support services so no one faces PF alone
Support research to improve understanding and future outcomes
Provide essential equipment and home adaptations like stairlifts and mobility aids
Challenge Donation Tracker
How Your Support Makes a Difference
There are many ways to support Every Breath Is Precious:
Donate (one-off or monthly)
Join our regular giving community — The Breath Circle
Become a corporate partner or matched giver
Fundraise in your community
Share the campaign and raise awareness
Donate £9
To symbolically sponsor a mile of the journey
Donate £26
to represent one day of running
Donate £50
to help fund vital patient support
Donate £100+
to fund life-changing home adaptations
Strava feed
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“The Magnificent AKs” Charity Fundraising Concert. Malmesbury, Wiltshire. In aid of the PF Trust.
Please see the below update from Phil Jones of the Magnificent AK’s who performed a charity fundraising concert in aid of the PF Trust during the height of storm Claudia in November 2025. Despite the severe weather interruptions the band managed to raise an incredible £1,600! Please follow this link to view some of the …
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Fire Side Chat at The WaterSide Inn
The Pulmonary Fibrosis Trust are proud to be closely linked with ILD-IN.Our patron Alain Roux recently met up with ILD-IN Co chair Marium Navqi for a fireside chat at The Waterside Inn, to discuss his family’s experience with pulmonary fibrosis
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Fixing lung health in the UK
Every 5 minutes, someone dies from a lung condition in the UK. And yet there’s a lack of political will to fund the research that could save these lives. Today, the Lung Research and Innovation Group have set out 10 priorities the government needs to take seriously to fix the lung research pipeline and fix …
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Great North Run 2024 FULL
All our places for the Great North Run 2024 are full, but if you are running for us through the ballot then please get in touch as would love to support you! If you wish to run for us in 2025, please contact us now to be added to the waitlist. Contact us today by …
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Kenny and Jacob’s big bridge walks
Seven-year-old Jacob will be out to conquer his biggest feat ever by walking the Humber & Severn Bridges both ways in July
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James runs Belfast Marathon.
James will be running Belfast Marathon on May 5th to support our charity and raise awareness of pulmonary fibrosis which his dad was diagnosed with. “My dad has been suffering from PF for the last 4 years, and as you know he won’t get any better. He is currently comfortable but on 24 hour oxygen …
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Fundraising Information Guide
We are very excited to launch our fundraising information guide, which is a 12 page booklet to support the amazing people who fundraise for our charity! Get yours now, and see how you can help someone living with pulmonary fibrosis.
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World Wide Foods challenge!
World Wise Foods are fundraising in memory of David Lamb through The Samworth Brothers Charity Challenge. A team of four from World Wise Foods – Sarah Eames, Rachel Munns, Hugh Elkington and David Burton decided to take on the challenge and raise money for this important but widely unknown disease. The challenge requires all team …
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The Yorkshire Three Peaks
The INTO M&E Solutions team took on The Yorkshire Three Peaks Challenge which takes on the peaks of Pen-y-Ghent (694 metres), Whernside (736 metres) and Ingleborough (723 metres), usually in this order, and in under 12 hours. They raised an amazing £1,485 which will help us with funding research to help find a cure, and …
Community
There is a strong pulmonary fibrosis community sharing experiences and providing support.
As a part of the community, the Pulmonary Fibrosis Trust has a platform available to all to raise awareness and provide support to each other.
Make sure you follow us on social media and join our PF Trust Community mailing list. We welcome stories, experiences and tips and share these with the community via our newsletter.
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