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Pulmonary Fibrosis Trust

Pulmonary Fibrosis Trust

Every breath matters

  • About the Pulmonary Fibrosis Trust
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    • About Pulmonary Fibrosis
      • What is pulmonary fibrosis?
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01543 442 191

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        • About
          • About the Pulmonary Fibrosis Trust
          • PFT Patron – Alain Roux
          • Trustees
          • Ambassadors
          • Research
        • Contact us
  • Support
        • Support

        • About Pulmonary Fibrosis
          • What is pulmonary fibrosis?
          • Diagnosing Pulmonary Fibrosis
          • Monitoring and management
          • How to help yourself
          • Allowances available
        • Support available
          • Emotional support
          • Equipment funding
          • Caravan holidays
          • Useful links
  • Get involved
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News

Pulmonary Fibrosis Awareness Month

September marks Pulmonary Fibrosis (PF) Awareness Month, a globally recognised awareness initiative aimed at raising awareness about the disease, its symptoms and the need for support.  Help us raise awareness of pulmonary fibrosis this September, as well as the support and resources the Pulmonary Fibrosis Trust can offer.  The more people that are talking about Pulmonary …

Read morePulmonary Fibrosis Awareness Month

Welcoming our first Patron, Chef Alain Roux

Pulmonary Fibrosis Trust announce their first Patron – Chef Alain Roux 23rd June 2023 – The Pulmonary Fibrosis Trust are delighted to announce the new Patron of the Charity – Chef Alain Roux. Chef Alain, world famous and celebrated chef, takes on the patronage in memory of his father, Michel Roux OBE, founder of world …

Read moreWelcoming our first Patron, Chef Alain Roux

Great North Run 2023

We have places available for the Great North Run and would love you to run for you or someone you know to be part of our running team! Make a difference today and sign up to raise funds for research to finding a cure to pulmonary fibrosis, or giving someone back their independence by funding …

Read moreGreat North Run 2023

GKA Idiopathic Pulmonary Fibrosis

GKA, a UK based medical market research agency, are looking to speak to individuals living with Idiopathic Pulmonary Fibrosis. We are currently undertaking a research project to consider how we can improve individuals experience of taking part in clinical trials. Please note that this is not a clinical trial, but a simulated experience. Who: This …

Read moreGKA Idiopathic Pulmonary Fibrosis

Goodbye AmazonSmile

Unfortunately Amazon have announced they will be closing their AmazonSmile program this month. Thank you to everyone who signed up and donated, we are very grateful for your support. £1,730.50 has been raised in the last few years so thank you so much to all who signed up! 💙 💜

Read moreGoodbye AmazonSmile

Research to understand the impact of living with Interstitial Lung Disease on patients

About the Research:The purpose of this research is to understand the impact of living with Interstitial Lung Disease on patients. Participants will be asked to complete an online survey which will take approximately 30 minutes. As a token of our appreciation for their time and opinions, we are offering an incentive of £35 to anyone who completes …

Read moreResearch to understand the impact of living with Interstitial Lung Disease on patients

Thank you to Leicestershire PFSG

Thank you so much to the Leicestershire Pulmonary Fibrosis Support Group who invited our chair, Peter Bryce, to give a presentation on what our charity does and also donate £1000. This donation will make such a huge difference to the vital funding and work that we do and we cannot thank you enough.

Read moreThank you to Leicestershire PFSG

GKA Idiopathic Pulmonary Fibrosis

GKA, a UK based medical market research agency, are looking to speak to individuals living with Idiopathic Pulmonary Fibrosis. We are currently undertaking a research project to consider how we can improve individuals experience of taking part in clinical trials. Please note that this is not a clinical trial, but a simulated experience. Who: This …

Read moreGKA Idiopathic Pulmonary Fibrosis

Thank you Jobie!

We would like to say a massive thank you to Jobie Travers, our ambassador, for all the hard work he has done over the years. We asked Jobie about if he could let us know about his fundraisers. “Hi my name is Jobie, an ambassador for the Trust, though not as active now because of …

Read moreThank you Jobie!

PFT Charity Single ‘Christmas Time’

‘Christmas Time’ Song Bio: Written for The Pulmonary Fibrosis Trust, Ambassador Ben Drake, wanted to try and capture the spirit of Christmas, being thankful for our loved ones who are there for us in times of need. A thank you of sorts in part, to anyone who looks after those in need, much like his mum …

Read morePFT Charity Single ‘Christmas Time’
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Our community is for ALL those affected by pulmonary fibrosis. Whether you are a PF/IPF sufferer, family or friend, healthcare professional or interested in raising awareness of pulmonary fibrosis, you are all welcome.

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01543 442 191

[email protected]

Pulmonary Fibrosis Trust
c/o EBS
Stowe House
St Chad’s Road
Lichfield
Staffordshire
WS13 6TJ

Pulmonary Fibrosis Trust is a Charity registered in England with number 1149901
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