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Pulmonary Fibrosis Trust

Pulmonary Fibrosis Trust

Every breath matters

  • About the Pulmonary Fibrosis Trust
    • About
      • About the Pulmonary Fibrosis Trust
      • PFT Patron – Alain Roux
      • Trustees
      • Ambassadors
      • Research
    • Contact us
  • Support
    • About Pulmonary Fibrosis
      • What is pulmonary fibrosis?
      • Diagnosing Pulmonary Fibrosis
      • Monitoring and management
      • How to help yourself
      • Allowances available
    • Support available
      • Emotional support
      • Equipment funding
      • Caravan holidays
      • Useful links
  • Get involved
    • Donate
    • Fundraising
      • Fundraising stories
    • Merchandise

01543 442 191

[email protected]
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  • About the Pulmonary Fibrosis Trust
        • About the Pulmonary Fibrosis Trust

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        • About
          • About the Pulmonary Fibrosis Trust
          • PFT Patron – Alain Roux
          • Trustees
          • Ambassadors
          • Research
        • Contact us
  • Support
        • Support

        • About Pulmonary Fibrosis
          • What is pulmonary fibrosis?
          • Diagnosing Pulmonary Fibrosis
          • Monitoring and management
          • How to help yourself
          • Allowances available
        • Support available
          • Emotional support
          • Equipment funding
          • Caravan holidays
          • Useful links
  • Get involved
        • Get involved to help others

        • Be inspired

        • Every donation helps

        • Donate
        • Merchandise
        • Fundraising
          • Fundraising stories

Ambassadors

JillJeffery

Jill Jeffery

Ambassador Coordinator

I first became aware of Pulmonary Fibrosis in 2014 when an old friend was diagnosed, and through him have gained some knowledge of the disease and of the help and support needed. My aim as Ambassador Coordinator for the Trust is to assist the Ambassadors in working together to develop greater support for people when they receive their diagnosis, especially in the early weeks and months, and sharing ideas for fund raising for the Trust.

Jacob McDonald_B&W cropped

Jacob McDonald

Ambassador

Hi. My name is Jacob and I am 7 years old. When I was only 18 months old I lost my Mum to a life-limiting condition called Pulmonary Fibrosis. Like my Dad I want to help raise awareness of this life-limiting disease and to help others too. My Dad is so determined to make a difference so I want to help him and all of you to try and make a difference too.

We now have our own saying SEE THEM HEAR THEM and we want this disease to be seen and recognised.

BenDrake

Ben Drake

Ambassador

Just three years after diagnosis, I sadly lost my dad, Barry, to IPF at only 67 years old. In his strength and will to fight this dreadful disease, he has left myself and our family so incredibly proud of his determination to help others after his passing through donating his body to medical research. I am honoured to be an Ambassador for the PF Trust and to continue to raise awareness in his memory.

SuHickman-e1591809056897

Su Hickman

Ambassador

My name is Su and I am a Nursing Associate in Oxford and currently waiting for my degree to come through. I am thrilled to be an Ambassador for the Pulmonary Fibrosis Trust. I first got involved with the Trust because I was raising awareness and money to help highlight the nature of Pulmonary Fibrosis. This was due to my Father in Law Ray passing away from IPF in 2016. Currently, I help create the “Minimes “ who are small clay figures of a person. I send them out to key workers and anyone else who would like them, with donations going to the Trust. Orders are continuing thanks to a BBC interview about the Trust and the Minimes which has helped dramatically with my fundraising. Together, we can make a difference in supporting and helping people with Pulmonary Fibrosis.

Sarah

Sarah Perraton

Ambassador

My father was diagnosed with IPF in December 2012 after being misdiagnosed for over a year . Since Dad’s death, we have made it our legacy to him to help raise awareness, as well as fundraising . We reach out to all those affected by pulmonary fibrosis, we do not want anyone going through what we did alone . We started the hashtag #ipffamily , #pffamily because we believe that all those affected by pulmonary fibrosis are a family and we are in this together.

Kenny

Kenny McDonald

Ambassador

Hi everyone, my name is Kenny McDonald. I lost my wife to pulmonary fibrosis when she was only 32 years of age. At the time I didn’t know what this disease was and so I’m making it my mission and determination to raise awareness and funds if I can. I have made so many new friends through the PF Trust and some wonderful friends on the Facebook forum as well. Our little boy Jacob is the mascot for the PF Trust for which I’m so proud for him to be. We look forward to making new friends and doing whatever we can for the PF Trust and all of you.

Alex-Rastin-black-and-white-photo-271-×-257-px

Alex Rastin

Ambassador

I lost my Mum to IPF in February 2019. Her diagnosis was just 8 months before after she had been misdiagnosed for 6 months. I had never heard of IPF and I was shocked to find out how serious the condition was and that there was no treatment. PFT provided practical support for my Mum in the shape of a mobility scooter and a longer lasting battery for her oxygen concentrator which enabled her to regain some confidence and independence. In addition, they also offered emotional support to both my Mum and I.  When my Mum passed away, I spent the rest of 2019 raising awareness of the condition in my community along with awareness of the PFT. It is soo important that people are aware of this condition, so that they can flag it with healthcare professionals and maybe to bring about an earlier diagnosis. That is my hope.

The Trust were truly brilliant and I can’t thank them enough for the support they gave to me and my Mum. I want to help them in their work; raising awareness of this life limiting condition and providing support to those affected.

Georgina Lee

Georgina Gee

Ambassador

I look after my mum who has PF (DIP) and i am also a student nurse in a GP surgery. Watching my mum live with PF, and the help she has recieved from The PFT has inspired me to try to support others where I can. I hold annual fundraisers to raise awareness and vital funds to ensure everyone has the same opportunities of the life enhancing equipment they need.

James Morgan B&W

James Morgan

Ambassador

James Morgan is a creative director, actor, and co-founder of Copperhouse Films Ltd, based in South Wales. With a background that spans theatre, television, and commercial work, James lives and breathes storytelling in all its forms.

He discovered his passion for performance as a high-energy child when his parents encouraged him to audition for Oliver!— more as an outlet than a career move. He surprised everyone, including himself, by landing the role of Charlie Bates as the youngest cast member. That early spark lit the fire for a lifelong journey in the creative arts.

Since then, James has lived and worked in Hollywood, Holland, and back in Wales, taking on roles in a wide range of productions and earning numerous awards along the way. A standout moment in his career was winning Best Actor at the It’s My Shout awards — the first time he truly felt he belonged in the industry and was pursuing the right path.

James’s approach to creativity is fluid and instinctive. He draws inspiration from everything around him — people, energy, conversations — and his ideas tend to come thick and fast, often flowing mid-conversation like a river through a broken dam. It’s this spark that fuels his work, whether he’s crafting an advert for a business or preparing for a demanding acting role.

Known for being fun, friendly, and generous with his time, James has a reputation for making people feel at ease. He’s the guy who’ll help anyone in need, without hesitation. As an actor, he’s often described as a chameleon — someone who can completely transform and disappear into a role, stunning even those who know him best.

What keeps him going? Helping others. James finds purpose in supporting small businesses, helping them tell their stories and grow. In acting, it’s about connection — the challenge of a character and the joy of making people feel something real.

At home, James is a proud dad to Zac (11) and Belle (8), and lives with his partner Lauren in South Wales. Their family also includes two sprocker spaniels: wise old Jack (10) and their energetic puppy, Freddie Furcurry (10 months). Whether he’s writing scripts, filming on location, or out on a muddy walk with the dogs, James brings the same creativity, humour, and heart to everything he does.

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Our community is for ALL those affected by pulmonary fibrosis. Whether you are a PF/IPF sufferer, family or friend, healthcare professional or interested in raising awareness of pulmonary fibrosis, you are all welcome.

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01543 442 191

[email protected]

Pulmonary Fibrosis Trust
c/o EBS
Stowe House
St Chad’s Road
Lichfield
Staffordshire
WS13 6TJ

Pulmonary Fibrosis Trust is a Charity registered in England with number 1149901
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